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The Disorder Channel Film - RARE HUMANS: Turning Hope into Action

June 18, 2025
Storytelling Stage
Storytelling Stage (Booth #349)
Eight rare disease families are changing the future of medicine as they pursue their missions to cure the incurable. These inspiring stories of love, loss and determination prove that every one of us has the ability to turn hope into action. Directed by Cheryl-Lynn Townsin. A panel discussion will follow the film.
Moderator
Karin Hoelzer, D.V.M., Ph.D.
Senior Director, Patient Advocacy
Biotechnology Innovation Organization
Speakers
Daniel DeFabio
Co-Founder
The Disorder Channel
Cheryl-Lynn Townsin
Founder
Lexi's Legacy
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